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| 11 Jul 2023 | |
| School News |
The 52km walk was to raise some money to support Cure DHDDS. Last year Tim Dixon’s brother found out that two of their three children, aged 13 and 8, have a DHDDS gene mutation which causes a metabolic disorder.
Children with these mutations suffer from neurological symptoms such as tremors, myoclonus, learning difficulties, ataxia and seizures. Unfortunately, for many with the genetic mutation, it seems to be progressive, with worsening conditions as they get older. They have been told that as the genetic mutations are so rare (only 70 cases have been recorded in the world so far), and because they have only recently been discovered, there is currently no treatment available for them. They - and their children - are our inspiration and motivation… This video shows you everything you need to know…
They would be very grateful for any support. Here’s the JustGiving page, if you’d like to donate:
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